“If we could put a man on the moon and bring him home safely in the 1960s, surely we can do more to find solutions for kids with brain cancer, the #1 disease-related cause of death in children in the USA.”   #Moonshot4Kids

Advocate with Us

Support the DIPG Awareness Resolution in Congress

Download and print:  For House of Representatives .

THANK YOUR SENATORS:

S. Res. 223 passed the Senate on May 23, 2019!

Although the text of S. Res. 223, the National DIPG Pediatric Brain Cancer Awareness Resolution, is a truncated version of H. Res. 114, it declares May 17 as National DIPG Pediatric Brain Cancer Awareness Day, and gives us strong support for inquiry into finding solutions for children.  Yet, it only vaguely alludes to the lack of research funding for children with cancer, which is the most important point of H. Res. 114.  Point to the action of the Senate on this when you ask your Rep to cosponsor H. Res. 114!  It needs 218 signatures to get an automatic House Vote.  We have 43, leaving 175 to go.

2019 is the 50th Anniversary of the Moonwalk
Neil Armstrong’s daughter died of DIPG in 1962

Did you know that brain cancer is the leading cause of death in children with cancer?  It’s also one of the least-funded areas of cancer research.  DIPG, diffuse intrinsic pontine glioma, is perhaps the deadliest of them all.  The experience of DIPG is a terrible wake-up call:   with no viable solutions, the discovery that profits and numbers count more than the value of your child’s life, DIPG exemplifies in a profound way the experience that so many children with cancer and their families endure–to watch their children die in utter helplessness.

All pediatric cancers are marginalized as rare and receive inadequate research funding into cures.  The DIPG Awareness Resolution calls for greater consideration for pediatric and high-mortality rate cancers for research funding, especially with our government resources.  It also designates May 17 as National DIPG Awareness Day in the USA, as May is Brain Tumor Awareness Month.

Why is the Moonwalk important?  Neil Armstrong’s daughter died of DIPG in 1962, yet standard treatment and terminal prognosis remain the same.  Even though DIPG kills more children than any other brain cancer, the research is horrifically underfunded by the medical industry and the federal government.   Out of sight, out of mind…the experience of DIPG is dark, desperate, and historically endured in isolation.  The movie “First Man” brilliantly depicts the effects of losing a child on Neil Armstrong, and on his family, as it’s cool reception in American media reflects the lack of awareness of the general public to this tragedy that affects thousands annually with certain regularity.

Call to Action

Rep. Brian Fitzpatrick on the importance of funding for pediatrics: