The Goal: We need as many voices as possible across the country asking for the Resolution to pass.

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) Organizer
Elizabeth Psar 865-765-9655 (US Southeast)
Paul Miller 720-989-5047 (Colorado, US West)
Vicki Thomas 732-773-5564 (NY-NJ Metro)
Kirsten Finley 859-991-1084 (US Midwest/SE)

Here is the letter for Members of the House of Representatives by our Advocacy Group–it carries much more weight when done on behalf of, or in concert with, YOUR support. Feel free to download and use the letter to support your request, if you would like, also. Scroll down for Senate info.

Letters to VIPs in the House:

House Leadership: Speaker Pelosi, Majority and Minority Leaders, and Whips

California Reps (the bill originated in California)

House Energy and Commerce Committee and Subcommittee on Health

IN A HURRY? GOING TO DC alone or with another group? WANT AN EASY ONE-PAGER to give to both your House Rep and Senators? Just download, print 3 copies (1 Rep and 2 Senators), and then write your story and “ask” that they cosponsor the DIPG Awareness Resolution on the back 🙂 . There’s no money or politics involved with this Resolution. You don’t have to take any of your group’s time (The Alliance, NBTS), but you should be able to give the letter to your Rep if you want him/her to support it and you’ve come all that way to Washington. If you can, use the versions below which include Resolution text, etc… Follow the steps to the right and we can help you too!

Find your District and Representative:

Ask Your Rep to Support a #HouseVote!

On Objections Which Occur in Some Cases:

H. Res. 114 needs 218 votes to pass, OR a “Suspension of Rules” House Vote for which it qualifies under Protocol 7, Rule 28. Ask your Rep to support a #HouseVote!

In the Senate:

Senator Marco Rubio (FL)

Your Senators need to hear from you too! Senators Marco Rubio (R-FL) and Jack Reed (D-RI) will introduce the Senate Awareness Resolution for DIPG in early May of 2019 and their procedure is different from the House. In the Senate, it will be “hotlined” for a vote on or right before the 17th and will pass only if there are no dissenters. Hence expressing a desire for the Resolution to pass from people in your state is extremely helpful to the process, beforehand! You may use the Advocacy Group letter for the Senate to accompany your statement of support, phone calls, emails, etc… AND! Your help is especially powerful if you are working on, or have knowledge of, your states DIPG Awareness Day Proclamation or Resolution.

Senator Jack Reed (RI)