Advocate With US

Lend Your Voice…to a child.

You may use our packet to accompany any communication, which includes introductory letter addressed to US House Members, a support letter from the Alliance for Childhood Cancer, the text of H. Res. 114, and a page detailing support for the Resolution nationwide.

DIPG Advocacy Group can do the work for you if you prefer

–no problem! Email and include your name, address to prove constituency, contact info, etc, and any other info relevant to your request. Directions

Here is a link to find YOUR House Representative’s info. ***influential Members for childhood cancer

***Is your Rep a Member of the Childhood Cancer Caucus, or Health Subcommittee of the House Energy and Commerce Committee? Here’s a letter which can accompany your request.

Write, Call, and Email.

  • The “ASK”: “Please support and cosponsor H. Res. 114. We must do better for our children with cancer!” Any US citizen/resident may do this. If your family or friends are directly affected, briefly share your story. Samples below.
  • Backing up what you do with a snail-mail letter is a good choice. Again, if you wish you may include our packet with your snail mail letter; simply download and print.
  • Use the link above to find your Representative online; every office allows you to write your Rep and email through their website. It’s quick, easy; take advantage! You may share the link for our packet to back-up your Ask.
  • Call! Call the Washington Office, and if you’re really committed, please call the District Office near you; you may also walk-in your request rather than snail-mail. Sample phone script
  • Samples in .pdf: Concerned Citizens / Cancer families&friends Samples in .docsx: Concerned Citizens /Cancer families&friends
  • Phone Script

The Goal: Right now we need as many voices as possible across the country asking for the Resolution to pass; there are 435 Districts, and so far, the Resolution has 47 co-sponsors. It needs 218 for an automatic House Vote, 171 to go.

DIPG as Ambassador to Public for Childhood Cancer

The Public needs powerful examples attain sufficient awareness to pressure Congress. If we want childhood cancer legislation like STAR and RACE to truly be effective, to have its allocations approved, to build upon and allow greater development and support for pediatric research, the Public needs to put pressure on Congress. “They can’t care if they’re not aware,” said Aimee Dickey, forever 12, over a decade ago… DIPG, in all of its horror, makes a very strong case for pediatric cancer. Use it.

“…To this day it is not unusual for parents to hear that there are no solutions for their child with DIPG because, ‘the numbers aren’t great enough for investors,’ in the wealthiest country in the world boasting the greatest technologies. DIPG children walk bravely toward their death as their bodies decline, in full awareness of what is happening to them in most cases, as their parents must witness this in utter helplessness…”

To support ALL CURRENT BILLS AFFECTING CHILDREN WITH CANCER visit The Children’s Cancer Cause, the US #1 Advocacy and Federal Policy organization.

Click link below for our facebook page.

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) Organizer
Elizabeth Psar 865-765-9655 (US Southeast)
Paul Miller 720-989-5047 (Colorado, US West)
Vicki Thomas 732-773-5564 (NY-NJ Metro)
Kirsten Finley 859-991-1084 (US Midwest/SE)

Here is the letter for Members of the House of Representatives by our Advocacy Group–it carries much more weight when done on behalf of, or in concert with, YOUR support. Feel free to download and use the letter to support your request, if you would like, also.

Letters to VIPs in the House:

House Leadership: Speaker Pelosi, Majority and Minority Leaders, and Whips

California Reps (the bill originated in California–they should be on board! Californians feel free to use this.)

House Energy and Commerce Committee and Subcommittee on Health

Find your District and Representative:

H. Res. 114 needs 218 votes to pass, OR a “Suspension of Rules” House Vote for which it qualifies under Protocol 7, Rule 28. Ask your Rep to support a #HouseVote!