News

Real-Time May Day on Capitol Hill: DIPG Advocacy Group’s Relentless Fight for Children with Brain Cancer In a Culture of Indifference

It’s not such a rare cancer in children; it’s the 2nd most common variety of pediatric brain cancer, and God help you if it crosses your path. WASHINGTON (PRWEB) MAY 01, 2019 Imagine hearing, after the brief onset of some unusual symptoms, that your child is going to die, that there are no viable treatments and you must take him or …

To the Members of the Energy and Commerce Committee, and Sub-Committee on Health

The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your position on the Committee, and consideration of support for this …

Wear the Shirt!

For the simple cost of the shirt and for Jack’s Angels to ship it to you, specify quantity, size Mens, Ladies, S,M,L,XL, @ $12 per shirt plus $5 to ship. Over 3 shirts, $3 per shirt; 7+ shirts, $2 per shirt. Calculate and make a simple donation with information in the memo, at Jack’s Angels, or visit our Facebook event. …

Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? What you need to know as an advocate about simple House Resolutions. Since the first iteration of the DIPG Awareness Resolution (114th Congress H. Res. 586 introduced 1/13/2016), we have occasionally experienced the disheartening “push-back” from certain legislative offices regarding an assumed abolishment of awareness days, which is not an altogether correct assumption. …

Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer

Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) tracy.manzer@mail.house.gov CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) katrina.rill@mail.house.gov Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland), along with 16 of their colleagues, introduced a bipartisan resolution to …

2019 Resolutions

We are fortunate to have Jackie Speier (D-CA-14) and David Joyce (R-OH-14) introducing the DIPG Awareness Resolution to the 116th Congress!  Previously known as H. Res. 586 in the 114th congress, and then just last session as H. Res. 69, the DIPG Awareness Resolution directly confronts the failure of our medical research system to adequately fund research into conditions and …