#LetJaceSpeak before Congress

Congressional Briefing

#CongressionalBriefing #DIPGbraincancer #Moonshot4Kids

Jace Ward is a pre-law student, 20 years old, who was diagnosed in May of 2019 with DIPG, diffuse intrinsic pontine glioma, notorious in the oncology community for its dismal <1% survival rate.

Because most diagnosed are young children between 5-9 years of age, and die within a year, and the symptoms of DIPG can be torturously limiting, it is rare for someone of this age and eloquence to be able to speak to the realities of the disease.  Even with hopeful advocacy, the decades of darkness and silence overshadow the few, urgent cries for support this disease inflicts.  And so, there will be a Congressional Briefing for Jace Ward to speak to the reality of DIPG and the unparalleled value of the much underfunded research for pediatric brain cancer, and the doors that DIPG awareness can open not only for science but for HOPE to thousands of children with brain cancer, the #1 disease-related cause of death for children in America. #Moonshot4Kids

For more information about the upcoming Congressional Briefing, contact us at dipgadvocacy@gmail.com

Schedule TBA!

Goes with tweet; two more pictures below

*Inviting Members of Congress, and alerting Health Subcommittee of Energy and Commerce, House Leadership: Speaker of the House, Chairman of Energy and Commerce, Chairwoman of Health Subcommittee