EVENT CANCELLED DUE TO CORONAVIRUS ESCALATIONS The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. SANTA CLARITA, CA, USA, November 1, 2020 /EINPresswire.com/ — DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the purpose of supporting …
Tag: Elizabeth Psar
What’s In A Day?
The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …
September 2020 #Moonshot4Kids, “Rally for Our Children” on Capitol Hill Goes Virtual
#Moonshot4Kids Virtual Rally event features legislators, childhood cancer survivors, researchers and families, live from Red Rocks Amphitheater, CO, 8:30pm ET, Sept. 25, 2020, heralding CureFest 2020 the following day. Sept. 5, 2020, Santa Clarita, CA–DIPG Advocacy Group and Jack’s Angels Inc, a charitable organization for awareness and research for DIPG and pediatric brain cancer based in Santa Clarita, CA, is …
To Congress, from Colleagues, Experts, Philanthropists, Parents, Patients
from Congressional Briefing 2/13/2020, 11am, 2168 Rayburn H.O.B. DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114 Congresswoman Jackie Speier (D-CA-14) “DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure.”* Dr. Sabine …
Special Delivery…
BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the House, and Committee Staff was first drafted on October 18th …
Real-Time May Day on Capitol Hill: DIPG Advocacy Group’s Relentless Fight for Children with Brain Cancer In a Culture of Indifference
It’s not such a rare cancer in children; it’s the 2nd most common variety of pediatric brain cancer, and God help you if it crosses your path. WASHINGTON (PRWEB) MAY 01, 2019 Imagine hearing, after the brief onset of some unusual symptoms, that your child is going to die, that there are no viable treatments and you must take him or …