In 2019, due to the advocacy efforts of this group and the support of the US Senate, the Senate passed S. Res. 223, and approved May 17th 2019 as “National DIPG Pediatric Brain Cancer Awareness Day”. However, it passed on May 23, and the designation was for May 17…but it was a powerful beginning.
In March 2020, aides from Senator Rubio’s office let us know they had put the 2020 Resolution on hold. Because of public support, especially from Florida advocates, we sent a letter to Senator Rubio’s office on your behalf and as a result, the process has been green-lighted!
Senators Marco Rubio (R-FL) and Jack Reed (D-RI) championed the 2020 Senate Resolution
—with Senators Braun (IN), Casey (PA), and Hyde-Smith (MS) signing on for it’s introduction as S. Res. 587 and UNANIMOUS VOTE on May 19, 2020 to retroactively designate May 17, 2020 as National DIPG Pediatric Brain Cancer Awareness Day! EIN Presswire Article