Author: dipgadvocate

Goal: Unanimous Consent Vote, Dec. 31!

tweet script: from 4-square: @JackieSpeier @GKButterfield @RepMcCaul @MikeKellyPA H. Res.114 recognizes May 17th as #ChildhoodCancer #DIPG Day. No money, no laws, just recognition…216 cosponsors can’t be wrong. Come together for kids fighting cancer. Isn’t that what our Caucus is for? PASS IT THIS TIME! 3 prong strategy: Get 218! 2-4 more signatures– Target list below. GA, MD, NY, PA, SC, …

Letter to Speaker Pelosi, 12/22/2020

What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to the current legislative protocol regarding exceptions for commemoratives.  From what …

For Community News

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For those wishing to make H. Res. 114 and the resistance House Leadership is giving it for consideration, National News, you may use these two docs, and our Letter to House Leadership. These 2 documents go together: Press Story for Community to Share H. Res. 114 Summary for Press to accompany story Letter to House Leadership

Jaisyn: In Loving Memory

Angie and Emanuel Reese, and their family in Plymouth, IN His mother’s FB post First and foremost THANK YOU? Thank you for all the love, prayers, texts, calls, food…just everything. Even though Jaisyn’s Journey ? has come to a close here on earth, it will never end. When I am able I will continue to advocate and fight for all …

Victims of Deadliest Childhood Cancer Plead for Passage of Long-Standing DIPG Resolution Before End of Congressional Session

The end of the 116th Congress approaches quickly as childhood cancer advocates are anxious to see H. Res. 114, the DIPG Awareness Resolution in the House of Representatives finally get a vote. The marginalization of childhood cancer research is not well understood by the general public, nor fully by Congress, but is eaten, slept, and breathed by parents of the afflicted. In …

Advocacy Group Hosts Demonstration at the US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death

EVENT CANCELLED DUE TO CORONAVIRUS ESCALATIONS The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. SANTA CLARITA, CA, USA, November 1, 2020 /EINPresswire.com/ — DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the purpose of supporting …

The Race for the Angels

REGISTRATION OPEN $20. Virtual 5k Run/Walk Challenge begins Nov. 1 at sunrise and continues through Sunday, Nov. 29 Support Awareness for DIPG and Pediatric Brain Cancer, and the “Little Bill That Could”, H. Res. 114, to the Finish Line! Proceeds benefit the DIPG Research Fund at Children’s Hospital Los Angeles Share a picture on social media with the hashtag #Moonshot4Kids, …

Turning Advocacy Into Activism

An event hosted by the Shepherd Foundation, letter from Catharine Young, CEO. For more information visit: https://www.rarecancertoolkit.com/events Good Morning,In a time where our voice matters more than anything, I wanted to personally invite you to our follow on event from the congressional briefing next week Wednesday October 28 12-1PM EST, to learn how to influence Congress, hone your story and create major impact. We …