News

Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? What you need to know as an advocate about simple House Resolutions. Since the first iteration of the DIPG Awareness Resolution (114th Congress H. Res. 586 introduced 1/13/2016), we have occasionally experienced the disheartening “push-back” from certain legislative offices regarding an assumed abolishment of awareness days, which is not an altogether correct assumption. …

Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer

Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) tracy.manzer@mail.house.gov CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) katrina.rill@mail.house.gov Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland), along with 16 of their colleagues, introduced a bipartisan resolution to …

2019 Resolutions

We are fortunate to have Jackie Speier (D-CA-14) and David Joyce (R-OH-14) introducing the DIPG Awareness Resolution to the 116th Congress!  Previously known as H. Res. 586 in the 114th congress, and then just last session as H. Res. 69, the DIPG Awareness Resolution directly confronts the failure of our medical research system to adequately fund research into conditions and …