Link to pdf includes endorsements page and resolution text Seeking Member Support for the Recognition of Children Fighting Brain Cancer: H. Res. 404, The National DIPG Awareness Resolution Oct. 1, 2021 To the Honorable Members of the United States House of Representatives, and Staff: Thank you for considering this otherwise obscured population and issue amid other pressing matters on Capitol …
News
117th Congress House and Senate Resolutions
In this 117th Congress, status as of May 17, 2021 in the House and Senate Senate passes S. Res. 231 by Unanimous Consent Amid our struggle for recognition for children with brain cancer in the House, the US Senate has greatly benefited our community by unanimously passing the 2019, 2020, and now the 2021 DIPG/Pediatric Brain Cancer Awareness Resolutions, led …
435 or Bust!
DIPG Advocacy Group Strategy and Goals for H. Res. 404
DIPG Awareness Resolution in the 117th Congress (Jan. 2021 – Jan. 2023) Our Letter To Congress (includes endorsements and Resolution text) pdf document download July 9, 2021 To our Leaders in the Childhood Cancer Awareness Movement, the Childhood Brain Cancer Community, Friends and Allies in Research and Awareness for the urgent unmet needs of our children in the USA: We …
July 7 Congressional Office Meetings
These districts today were previously supporters of the Resolution during the last session of Congress. Times of meeting are represented in Eastern Daylight Time (EDT). 10:00am: Office of Congresswoman Michelle Fischbach (MN-07) with Sr. Legislative Assistant Will Smethers (previously represented by Congressman Peter Collins) 11:00am: Office of Congresswoman Vicki Hartzler (MO-4) with Colleen Castle, Legislative Assistant 15:00h (3pm): Office of …
RUBIO APPLAUDS PASSAGE OF RESOLUTION TO DESIGNATE MAY 17 AS DIPG PEDIATRIC BRAIN CANCER AWARENESS DAY
For Immediate Release Contact: Dan Holler, 202-224-3041 May 25, 2021 Washington, D.C. — U.S. Senator Marco Rubio (R-FL) applauded the passage of his resolution to designate May 17 as DIPG Pediatric Brian Cancer Awareness Day (S.Res.231), which raises awareness of, and encourages research on Diffuse Intrinsic Pontine Glioma (DIPG) tumors and other pediatric cancers. DIPG is not only the deadliest form of pediatric …
Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day
FOR IMMEDIATE RELEASE:May 17, 2021CONTACT:Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by introducing a resolution with Rep. David Joyce (R-OH) to establish May 17th as DIPG …
Press Release, Senator Mike Braun (R-IN)
FOR IMMEDIATE RELEASE May 13, 2021 Senator Mike Braun reintroduces Promising Pathway Act (PPA) & The Accelerated Drug Approval for Prescription Therapies (ADAPT) Act WASHINGTON — Today, U.S. Senator Mike Braun reintroduced two bills that will help get treatments to American patients more efficiently: The Accelerated Drug Approval for Prescription Therapies (ADAPT) Act and the Promising Pathway Act (PPA). “Americans …
Bexion Pharmaceuticals Announces the Addition of Olivia F. Kirtley to Board of Directors
FOR IMMEDIATE RELEASE Covington, KY February 22, 2021, pdf original format Bexion Pharmaceuticals, Inc. announced today that it has added Olivia F. Kirtley to its Board of Directors. Ms. Kirtley, a Certified Public Accountant and Chartered Global Management Accountant, is a business consultant on strategic, risk and corporate governance issues. She brings to Bexion extensive experience as a former chief …
2021
HAPPY NEW YEAR! connect to actual newsletter from Jack’s Angels THANK YOUTo our doctors and researchers, clinicians and caregivers for your tireless work on behalf of our children and creating hope, and for creating the amazing #Moonshot4Kids Briefing this year, a first for pediatric brain cancer and DIPG. The same enthusiastic thanks to DragonMaster Foundation, Michael Mosier Defeat DIPG foundation, Julia …