“Letters To The Speaker” is the final public campaign for
H.Res.114 to get a simple acknowledgement of consideration for scheduling.
“Until we can create more impactful legislation to fund research, H. Res. 114, our #Moonshot4Kids, could help speed financial support and scientific collaboration, accelerating effective therapies to save lives.“
200-400 children are diagnosed annually with DIPG, diffuse intrinsic pontine glioma. Most will be gone after one year. A few may live 2-3 years. A handful might live 5 years. One might live a full life span. There is nowhere on Earth you can go to save your child from DIPG.
The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality.
Live protest 11/17 in DC cancelled, “Letters to the Speaker” continues through December 31.
WRITE — CALL — SUBMIT VIDEO STATEMENT
Submit video statement of support for H.Res.114
Video Presentation Nov. 29, 8pm EST will be streamed on Childhood Cancer Talk Radio’s facebook page and on YouTube.
Submit video instructions FLYER
1. In-person rally in Washington DC at the US Capitol Building on the West Lawn, was CANCELLED due to accelerated coronavirus restrictions and concerns for our team, and also the beginnings of the elections protests 11/13.
2. You may register to submit a video (see flyer link), and then upload at http://bit.ly/ms4k_1117
3. Nov. 29 “Letters to the Speaker” video with YOUR submissions–let your voice be heard! AIRS ON FACEBOOK, YOUTUBE
3. Donate. This campaign is supported by Jack’s Angels Inc and DIPG Advocacy Group; we appreciate your participation in any way. Use the memo “moonshot4kids”.
“…Most people do not think of brain cancer when they think of childhood cancer. It’s the most prevalent cancer in children and leads in childhood cancer deaths. We need this awareness resolution and awareness day, May 17, to alert and educate the public about it, our lawmakers, and clinicians. We’re discovering them too late, or at autopsy because we just don’t talk about it, and nobody knows. Awareness can help save lives today..”–from press release