Dingell, Joyce, McCaul Introduce Resolution Honoring DIPG Awareness Day

Dingell, Joyce, McCaul Introduce Resolution Honoring DIPG Awareness DayShare on Facebook Share on Twitter Print this Page Share by EmailWashington, May 16, 2023Tags: Health Care Representatives Debbie Dingell (MI-06), David Joyce (OH-14), and Michael McCaul (TX-10), today introduced a resolution honoring May 17 as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day to support expanded research for treatments and care for DIPG. DIPG is the …

To Previous Cosponsors of H. Res. 404

The Opportunity to Help A Voiceless Population Where Others Cannot. Merits of H. Res. 404, The National DIPG Awareness Resolution November 7, 2022 To the Honorable Previous Co-Sponsors of the DIPG Awareness Resolution, and Staff: Thank you for taking a few minutes to consider renewing your support for the DIPG Awareness Resolution, H. Res. 404, which is unchanged from last …

Moonshot4Kids Congressional/OSTP Briefing and Reception Support DIPG Awareness Resolution for Childhood Brain Cancer

A forum of research experts, families, industry leaders and philanthropists make the case for Congressional acknowledgement of DIPG and childhood brain cancer. WASHINGTON, DC, UNITED STATES, May 26, 2022 /EINPresswire.com/ — The Moonshot4Kids Congressional/OSTP Briefing on Tuesday, May 17 at 9 am in the Rayburn House Office Building was hosted by DIPG Advocacy Group, The Cure Starts Now, and the Carson Leslie Foundation, with …

If No One Knows, No One Cares:  #Moonshot4Kids Delivers Urgent Message to President Biden at the White House

At the White House Cancer Moonshot Announcement, a childhood cancer advocate gets a golden opportunity to share an urgent message with the President. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down.”— Janet Demeter LOS ANGELES, CA, USA, February 8, 2022/EINPresswire.com/ — Janet …

What’s In A Day?

The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …

September 2020 #Moonshot4Kids, “Rally for Our Children” on Capitol Hill Goes Virtual

 #Moonshot4Kids Virtual Rally event features legislators, childhood cancer survivors, researchers and families, live from Red Rocks Amphitheater, CO, 8:30pm ET, Sept. 25, 2020, heralding CureFest 2020 the following day. Sept. 5, 2020, Santa Clarita, CA–DIPG Advocacy Group and Jack’s Angels Inc, a charitable organization for awareness and research for DIPG and pediatric brain cancer based in Santa Clarita, CA, is …

PNOC doctors address Congressional Briefing in Washington D.C.

Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …

To Congress, from Colleagues, Experts, Philanthropists, Parents, Patients

from Congressional Briefing 2/13/2020, 11am, 2168 Rayburn H.O.B.   DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114 Congresswoman Jackie Speier (D-CA-14) “DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure.”* Dr. Sabine …

No Time to Lose: Advocacy Group Makes Congressional Hearing Request for Jace Ward, Diagnosed with the Deadliest Pediatric Cancer.

Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for its less than 1% long-term survival rate.  Ironically, this is the …

Special Delivery…

BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the House, and Committee Staff was first drafted on October 18th …