To House Leadership

DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading disease-related cause of childhood mortality in the United States:  pediatric brain cancer.  After 4 years have passed and a third introduction, little has changed for these children.  By the end of this session of Congress and …

Special Delivery…

BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the House, and Committee Staff was first drafted on October 18th …

To Members of the Childhood Cancer Caucus and House Leadership in Matters Affecting America’s Children

Re:  H. Res. 114, the DIPG Awareness Resolution, #Moonshot4Kids Sept. 7, 2019 To the Congressional Caucus for Childhood Cancer and all Members of elevated influence in the House of Representatives concerning America’s children: Thank you for considering this letter and the H. Res. 114  information being distributed among all members of the House of Representatives.  Because of your position of …

To the Leadership of the House of Representatives H. Res. 114, the DIPG Awareness Resolution

Sept. 3, 2019 To the Honorable Speaker Pelosi (CA-14) of the House of Representatives​, to House Majority Leader Hoyer(MD-5), House Minority Leader McCarthy(CA-23), and to the Honorable House Majority and Minority Whips, James Clyburn(SC-6) and Steve Scalise(LA-1): To Chairman Pallone(NJ-6) and Ranking Member Walden (OR-2) of the House Energy and Commerce Committee, and Chairman Eshoo(D-18) and Ranking Member Burgess (TX-26) …

To the Members of the Energy and Commerce Committee, and Sub-Committee on Health

The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your position on the Committee, and consideration of support for this …

Regarding Vague Reference Objections to Awareness Days

‘We don’t do those anymore…’ Now what? What you need to know as an advocate about simple House Resolutions. Since the first iteration of the DIPG Awareness Resolution (114th Congress H. Res. 586 introduced 1/13/2016), we have occasionally experienced the disheartening “push-back” from certain legislative offices regarding an assumed abolishment of awareness days, which is not an altogether correct assumption. …