Dingell, Joyce, McCaul Introduce Resolution Honoring DIPG Awareness Day

Dingell, Joyce, McCaul Introduce Resolution Honoring DIPG Awareness DayShare on Facebook Share on Twitter Print this Page Share by EmailWashington, May 16, 2023Tags: Health Care Representatives Debbie Dingell (MI-06), David Joyce (OH-14), and Michael McCaul (TX-10), today introduced a resolution honoring May 17 as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day to support expanded research for treatments and care for DIPG. DIPG is the …

To Previous Cosponsors of H. Res. 404

The Opportunity to Help A Voiceless Population Where Others Cannot. Merits of H. Res. 404, The National DIPG Awareness Resolution November 7, 2022 To the Honorable Previous Co-Sponsors of the DIPG Awareness Resolution, and Staff: Thank you for taking a few minutes to consider renewing your support for the DIPG Awareness Resolution, H. Res. 404, which is unchanged from last …

#PassHRES404!

How do we educate people to the fact that childhood cancer is the #1 disease-related cause of death in children and there has been no change in treatment options or prognosis for the deadliest tumors like DIPG since Neil Armstrong’s daughter died of it in 1962? #passHRES404!! The DIPG Awareness Resolution (H. Res. 404) is a simple House Resolution which …

Moonshot4Kids Congressional/OSTP Briefing and Reception Support DIPG Awareness Resolution for Childhood Brain Cancer

A forum of research experts, families, industry leaders and philanthropists make the case for Congressional acknowledgement of DIPG and childhood brain cancer. WASHINGTON, DC, UNITED STATES, May 26, 2022 /EINPresswire.com/ — The Moonshot4Kids Congressional/OSTP Briefing on Tuesday, May 17 at 9 am in the Rayburn House Office Building was hosted by DIPG Advocacy Group, The Cure Starts Now, and the Carson Leslie Foundation, with …

If No One Knows, No One Cares:  #Moonshot4Kids Delivers Urgent Message to President Biden at the White House

At the White House Cancer Moonshot Announcement, a childhood cancer advocate gets a golden opportunity to share an urgent message with the President. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down.”— Janet Demeter LOS ANGELES, CA, USA, February 8, 2022/EINPresswire.com/ — Janet …

What’s In A Day?

The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …

To House Leadership

DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading disease-related cause of childhood mortality in the United States:  pediatric brain cancer.  After 4 years have passed and a third introduction, little has changed for these children.  By the end of this session of Congress and …

Special Delivery…

BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the House, and Committee Staff was first drafted on October 18th …

To Members of the Childhood Cancer Caucus and House Leadership in Matters Affecting America’s Children

Re:  H. Res. 114, the DIPG Awareness Resolution, #Moonshot4Kids Sept. 7, 2019 To the Congressional Caucus for Childhood Cancer and all Members of elevated influence in the House of Representatives concerning America’s children: Thank you for considering this letter and the H. Res. 114  information being distributed among all members of the House of Representatives.  Because of your position of …

To the Leadership of the House of Representatives H. Res. 114, the DIPG Awareness Resolution

Sept. 3, 2019 To the Honorable Speaker Pelosi (CA-14) of the House of Representatives​, to House Majority Leader Hoyer(MD-5), House Minority Leader McCarthy(CA-23), and to the Honorable House Majority and Minority Whips, James Clyburn(SC-6) and Steve Scalise(LA-1): To Chairman Pallone(NJ-6) and Ranking Member Walden (OR-2) of the House Energy and Commerce Committee, and Chairman Eshoo(D-18) and Ranking Member Burgess (TX-26) …