Dingell, Joyce, McCaul Introduce Resolution Honoring DIPG Awareness DayShare on Facebook Share on Twitter Print this Page Share by EmailWashington, May 16, 2023Tags: Health Care Representatives Debbie Dingell (MI-06), David Joyce (OH-14), and Michael McCaul (TX-10), today introduced a resolution honoring May 17 as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day to support expanded research for treatments and care for DIPG. DIPG is the …
Tag: DIPG
#PassHRES404!
How do we educate people to the fact that childhood cancer is the #1 disease-related cause of death in children and there has been no change in treatment options or prognosis for the deadliest tumors like DIPG since Neil Armstrong’s daughter died of it in 1962? #passHRES404!! The DIPG Awareness Resolution (H. Res. 404) is a simple House Resolution which …
Moonshot4Kids Congressional/OSTP Briefing and Reception Support DIPG Awareness Resolution for Childhood Brain Cancer
A forum of research experts, families, industry leaders and philanthropists make the case for Congressional acknowledgement of DIPG and childhood brain cancer. WASHINGTON, DC, UNITED STATES, May 26, 2022 /EINPresswire.com/ — The Moonshot4Kids Congressional/OSTP Briefing on Tuesday, May 17 at 9 am in the Rayburn House Office Building was hosted by DIPG Advocacy Group, The Cure Starts Now, and the Carson Leslie Foundation, with …
What’s In A Day?
The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …
September 2020 #Moonshot4Kids, “Rally for Our Children” on Capitol Hill Goes Virtual
#Moonshot4Kids Virtual Rally event features legislators, childhood cancer survivors, researchers and families, live from Red Rocks Amphitheater, CO, 8:30pm ET, Sept. 25, 2020, heralding CureFest 2020 the following day. Sept. 5, 2020, Santa Clarita, CA–DIPG Advocacy Group and Jack’s Angels Inc, a charitable organization for awareness and research for DIPG and pediatric brain cancer based in Santa Clarita, CA, is …
To House Leadership
DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading disease-related cause of childhood mortality in the United States: pediatric brain cancer. After 4 years have passed and a third introduction, little has changed for these children. By the end of this session of Congress and …
PNOC doctors address Congressional Briefing in Washington D.C.
Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …
#CongressionalBriefing #DIPGwontWait #Moonshot4Kids #NoTimeToLose #DefeatDIPG
Jace Ward is a pre-law student, 20 years old, who was diagnosed in May of 2019 with DIPG, diffuse intrinsic pontine glioma, notorious in the oncology community for its dismal <1% survival rate. He will be among our panelists in the upcoming briefing scheduled for February 13, 2020. Because most diagnosed are young children between 5-9 years of age, and …
No Time to Lose: Advocacy Group Makes Congressional Hearing Request for Jace Ward, Diagnosed with the Deadliest Pediatric Cancer.
Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for its less than 1% long-term survival rate. Ironically, this is the …
To the Leadership of the House of Representatives H. Res. 114, the DIPG Awareness Resolution
Sept. 3, 2019 To the Honorable Speaker Pelosi (CA-14) of the House of Representatives, to House Majority Leader Hoyer(MD-5), House Minority Leader McCarthy(CA-23), and to the Honorable House Majority and Minority Whips, James Clyburn(SC-6) and Steve Scalise(LA-1): To Chairman Pallone(NJ-6) and Ranking Member Walden (OR-2) of the House Energy and Commerce Committee, and Chairman Eshoo(D-18) and Ranking Member Burgess (TX-26) …