To House Leadership

DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading disease-related cause of childhood mortality in the United States:  pediatric brain cancer.  After 4 years have passed and a third introduction, little has changed for these children.  By the end of this session of Congress and …

PNOC doctors address Congressional Briefing in Washington D.C.

Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …

No Time to Lose: Advocacy Group Makes Congressional Hearing Request for Jace Ward, Diagnosed with the Deadliest Pediatric Cancer.

Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for its less than 1% long-term survival rate.  Ironically, this is the …

To the Leadership of the House of Representatives H. Res. 114, the DIPG Awareness Resolution

Sept. 3, 2019 To the Honorable Speaker Pelosi (CA-14) of the House of Representatives​, to House Majority Leader Hoyer(MD-5), House Minority Leader McCarthy(CA-23), and to the Honorable House Majority and Minority Whips, James Clyburn(SC-6) and Steve Scalise(LA-1): To Chairman Pallone(NJ-6) and Ranking Member Walden (OR-2) of the House Energy and Commerce Committee, and Chairman Eshoo(D-18) and Ranking Member Burgess (TX-26) …

Real-Time May Day on Capitol Hill: DIPG Advocacy Group’s Relentless Fight for Children with Brain Cancer In a Culture of Indifference

It’s not such a rare cancer in children; it’s the 2nd most common variety of pediatric brain cancer, and God help you if it crosses your path. WASHINGTON (PRWEB) MAY 01, 2019 Imagine hearing, after the brief onset of some unusual symptoms, that your child is going to die, that there are no viable treatments and you must take him or …