To Congress, from Colleagues, Experts, Philanthropists, Parents, Patients

from Congressional Briefing 2/13/2020, 11am, 2168 Rayburn H.O.B.   DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114 Congresswoman Jackie Speier (D-CA-14) “DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure.”* Dr. Sabine …

Special Delivery…

BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the House, and Committee Staff was first drafted on October 18th …

Real-Time May Day on Capitol Hill: DIPG Advocacy Group’s Relentless Fight for Children with Brain Cancer In a Culture of Indifference

It’s not such a rare cancer in children; it’s the 2nd most common variety of pediatric brain cancer, and God help you if it crosses your path. WASHINGTON (PRWEB) MAY 01, 2019 Imagine hearing, after the brief onset of some unusual symptoms, that your child is going to die, that there are no viable treatments and you must take him or …