H. Res. 404: Spearheading the Childhood Cancer Awareness Movement with DIPG

Our kids don’t deserve a death sentence.

Did you know that brain/CNS tumors lead in childhood cancer incidence, and childhood cancer deaths?  It’s also one of the least-funded areas of cancer research.  DIPG, diffuse intrinsic pontine glioma, is perhaps the deadliest of them all, responsible on its own for a significant portion of the annual childhood cancer death toll.  The experience of DIPG is a terrible wake-up call:   with no viable solutions, we discover that “investment justification” matters more in the world of medical research than the urgency to save our children’s lives. DIPG exemplifies in a profound way the experience that so many children with cancer and their families endure–to watch their children die in utter helplessness with few, if any, out-dated, ineffective therapies available.

Sign to support the letter to the Majority Leader, to allow a vote! #PASSHRES404 #DIPGWONTWAIT

Letter to the House Majority Leader

US Residents! Make sure your Rep is signed on

Our Letter to Congress

The experience of DIPG powerfully demonstrates the urgent need for our children to be accommodated rather than marginalized by the medical research investment culture. 

“With this resolution we are asking our members of Congress to help bring the merciless suffering and deaths of our children out of obscurity, that we might attract a cure for them more quickly, and educate about the prevalence and symptoms of childhood brain cancer to save lives today.”

Letter to Congress, with Resolution Text H. Res. 404 Press Summary

The DIPG Awareness Resolution in US Congress (H. Res. 404) directly confronts the neglect of childhood cancer research and suggests that pediatric and high-mortality rate cancers have greater consideration in the research grant process. In other words, it suggests that children and the dying be a greater priority for research into cures. It also suggests that federal funding for childhood cancer research be increased to better accommodate the unmet needs of our children.

DIPG Advocacy Group at the 2/2/22 Announcement of the New Cancer Moonshot!

quick letter? Send here to your Rep in Congress!

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#Moonshot4Kids Press Summary 117th Congress Letter to Congress. H. Res. 404 text

Dr. Michelle Monje speaks to the importance of DIPG and childhood brain cancer awareness to accelerate efforts toward finding effective therapies for the afflicted.

H. RES. 404

Press Release from Congresswoman Dingell (MI-12)

Press Summary gives a description for the public and a brief history of the Resolution.

Click for info about the National DIPG Awareness Resolution in US Congress

Rep. Brian Fitzpatrick, author of the Fairness to Kids with Cancer Act, on the importance of funding for pediatrics: