Congressional Briefing

#Moonshot4Kids Congressional Briefing & Summit

News Article with Details

REGISTER HERE

Feb. 13, 2020, Washington D. C.

DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114

Briefing Program

H. Res. 114 Summary for Press

11am, Rayburn House Office Building, “The Gold Room” (2168) 45, Independence Avenue SW, Washington DC 20515

And SUMMIT: “The State of DIPG”

2pm, Covington & Burling, LLP 850 10th Street NW, Washington, DC 20001 / registration required, photo-ID will be requested for entry at venue: bit.ly/dipgevent

303 Pennsylvania Ave SE,
Washington DC, 20003
Get Directions | 202.543.8222

6 PM COMMUNITY DINNER — FUN WITH FRIENDS at “WE THE PIZZA”! Fun with food and friends, 6pm R E G I S T E R H E R E

ACCOMMODATIONS . For more information about the upcoming Congressional Briefing, contact us at dipgadvocacy@gmail.com. HOTELS for February 12, 13th: if you call, mention “DIPG Advocacy Group” block of rooms.

Hyatt Place Capitol Hill

Hyatt Regency Capitol Hill

#CongressionalBriefing #DIPGwontWait #Moonshot4Kids #NoTimeToLose #DefeatDIPG

Jace Ward is a pre-law student, 20 years old, who was diagnosed in May of 2019 with DIPG, diffuse intrinsic pontine glioma, notorious in the oncology community for its dismal <1% survival rate. He will be among our panelists in the upcoming briefing scheduled for February 13, 2020.

Because most diagnosed are young children between 5-9 years of age, and die within a year, and the symptoms of DIPG can be torturously limiting, it is rare for someone of this age and eloquence to be able to speak to the realities of the disease.  Even with hopeful advocacy, the decades of darkness and silence overshadow the urgent cries for support this disease continues to destroy.  The Congressional Briefing will be an opportunity for Jace Ward and world renown experts to speak to the reality of DIPG and the unparalleled value of the much underfunded research for pediatric brain cancer, and the doors that DIPG awareness can open not only for science but for HOPE to thousands of children with brain cancer, the #1 disease-related cause of death for children in America. This is our Moonshot4Kids!

#LetJaceSpeak #DIPGwontWait #Moonshot4Kids

*Inviting Members of Congress, and alerting Health Subcommittee of Energy and Commerce, House Leadership: Speaker of the House, Chairman of Energy and Commerce, Chairwoman of Health Subcommittee