Congressional Briefing

H. Res. 114 is a plea to you, our Representatives in Congress, for help; it challenges the world to be aware of this deadly killer of children and know DIPG by name, and to inspire the collaboration of resources toward its cure. With a simple signature, you have the power to attach “hope” to pediatric brain cancer. We hope with all our hearts and minds, that you do.”

click picture for Briefing Synopsis

#Moonshot4Kids Congressional Briefing & Summit

Feb. 13, 2020, Washington D. C.

DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114

Takeaway important quotes, “To Members of Congress”

Full Synopsis of Briefing pdf

Jace Ward’s testimony can be found at: 58:20

watch the video

Original Program

H. Res. 114 Summary for Press

11am, Rayburn House Office Building, “The Gold Room” (2168) 45, Independence Avenue SW, Washington DC 20515

Pre-Event News Article with Details

And SUMMIT: “The State of DIPG

Program

2pm, Covington & Burling, LLP 850 10th Street NW, Washington, DC 20001

#CongressionalBriefing #DIPGwontWait #Moonshot4Kids #NoTimeToLose #DefeatDIPG

Jace Ward is a pre-law student, 20 years old, who was diagnosed in May of 2019 with DIPG, diffuse intrinsic pontine glioma, notorious in the oncology community for its dismal <1% survival rate. He will be among our panelists in the upcoming briefing scheduled for February 13, 2020. His speech can be found on p. 21-23 of the Briefing Synopsis.

Jace Ward’s contribution to briefing

Because most diagnosed are young children between 5-9 years of age, and die within a year, and the symptoms of DIPG can be torturously limiting, it is rare for someone of this age and eloquence to be able to speak to the realities of the disease.  Even with hopeful advocacy, the decades of darkness and silence overshadow the urgent cries for support this disease continues to destroy.  The Congressional Briefing has been a opportunity for Jace Ward and world renown experts to speak to the reality of DIPG and the unparalleled value of the much underfunded research for pediatric brain cancer, and the doors that DIPG awareness can open not only for science but for HOPE to thousands of children with brain cancer, the #1 disease-related cause of death for children in America. This is our Moonshot4Kids!

#LetJaceSpeak #DIPGwontWait #Moonshot4Kids

*Inviting Members of Congress, and alerting Health Subcommittee of Energy and Commerce, House Leadership: Speaker of the House, Chairman of Energy and Commerce, Chairwoman of Health Subcommittee