After accidents and injuries, cancer is the leading cause of death in children in the US. CNS(Central Nervous System) tumors are actually the leading disease-related cause of death in children in the United States.
DIPG accounts for the majority of pediatric brain tumor deaths annually, and is the 2nd most common brain tumor in pediatric incidence. DIPG is the most devastating of pediatric malignancies; almost all children with this disease die within 2 years of diagnosis. Median survival time post-diagnosis is 9 months; without treatment, they have weeks, or days.
No parent should ever hear that there are no solutions for their child because his or her life is insignificant to research investors, yet this is a common experience today. We remain committed in our advocacy for children with DIPG and all childhood cancers to raising awareness to the inadequacies of a medical research investment culture that systematically ignores those lives most needy of a cure.
Why is DIPG Awareness Important?
H. Res. 114 of course names this disease, and our group is comprised mainly of DIPG parents, but we advocate for all pertinent childhood disease legislation which supports prioritzing children and pediatric research.
How can I learn more about the group?
DIPG Advocacy Group began on Facebook and you can join this group at www.facebook.com/groups/HRes114, and the page Moonshot4Kids. You may be in contact with us directly on the links below, or write to firstname.lastname@example.org or email@example.com. You may contact Janet our Group Organizer by phone or text at 818-400-2724.