The DIPG Advocacy Group is a coalition of childhood cancer organizations and individual childhood cancer advocates dedicated to the success of the DIPG Awareness Resolution in US Congress, H. Res. 114. Awareness is the first step toward greater research funding for the deadliest and most rapacious killer of our children, pediatric brain cancer. DIPG is the second most common type, and is responsible for the majority of pediatric brain cancer deaths. On its own it represents a literal “death-row” for children with cancer, with only a rare few ever escaping. Until the general public and the powers that be are more fully aware of the fact that our medical industrial complex marginalizes, rather than accommodates, the urgent needs of children with cancer, progress will continue to be inadequate to make a real difference in their lives, or to save them.
It is our belief and hope that by raising awareness to the failure of our medical research investment culture in accommodating the urgent, unmet needs of America’s children with H. Res. 114, the success of all childhood cancer legislation and policy will be more expedient and met with less resistance. The Creating Hope Act Reauthorization of 2019 should have already been passed. The Gabriella Miller Kids First Research Act 2.0, genius in its funding without tax-payer dollars supporting a crucial data-base for scientific research, is a no-brainer. All other measures supporting access and coverage to care for children with deadly disease at this difficult time of pandemic should have already been addressed…but the awareness of urgency is not there. These children have no voice; their families fully engaged in survival mode. We need this Resolution to get a few minutes of time from the Leadership of the House of Representatives. We need it to pass, not next session when its more convenient, as there is never going to be a convenient time to address the needs of our children. We need it to pass THIS SESSION. NOW. We hope you lend your passion to the fight.
Many individual childhood cancer advocates
LEADING DEMOCRAT SPONSOR: Congresswoman Jackie Speier (D-CA-14)
LEADING REPUBLICAN SPONSOR: Congressman David Joyce (R-OH-14)