Advocate With US

“Our kids don’t deserve a death sentence.” Make childhood cancer history with us!

SIGN-ON support form for individuals and orgs

FINAL PUBLIC ACTION

1. Call your Representatives Washington DC office and leave a message asking them to make a request to Majority Leader Hoyer to schedule H. RES. 404 for a vote!

“Our children have no voice; after 7 years, nearly 3000 more children lost in the USA to DIPG alone, a House Majority of support, and the Speaker supporting it, it’s time to schedule a vote before the end of the 117th Congress for the DIPG Awareness Resolution! Please; our children are worth 10 minutes of consideration amid the post office namings, and other important legislative activity.”

2. Call Leader Hoyer’s office (202-225-4131) and the FLOOR VOTE TEAM (202-225-3130) and leave the message to schedule H. RES. 404.

click picture to sign ||

Most importantly H. Res. 404 will impact the national narratives and beliefs people commonly hold about childhood cancer, and accelerate the production of effective therapies. We are so very close in understanding yet so far away in awareness and needed funding for clinical trials. Awareness is, and has been historically, the necessary catalyst for a cure.

At the close of the last session of Congress, the DIPG Awareness Resolution gained almost a majority of signatures–215–FOR THE SECOND TIME–which is unprecedented for a resolution of this kind for childhood disease. Our goal is to gain a clear majority which would ensure that the Resolution, after 7 years, four introductions and nearly 2800 more children lost to DIPG, will finally be given consideration for scheduling for a #HouseVote!

–>mail your child’s name, picture, location, subject line #HouseVote! to: moonshot4kids@gmail.com for their picture to be included at this historic event!

2 actions:

  1. sign-on the support form for the Letter to the Majority Leader
  2. Ask your Rep to support H. Res. 404 here at the magic portal at the Children’s Cancer Cause Action page, to your Rep in Congress!

Visit govtrack.us to see if your Rep is on the list of current cosponsors

What is H. Res. 404 and what does it do?

The National DIPG Awareness Resolution: Our letter to Congress with resolution text

Press Summary gives a description for the public and a brief history of the Resolution.

  1. Alerts Congress and the American Public to the underfunding of the childhood cancer research space using the powerful example of DIPG, the 2nd most common brain tumor in children and the deadliest. DIPG is responsible on its own for the majority of childhood brain cancer deaths annually, representing a significant portion of the annual childhood cancer death toll. Yet outcomes have not changed for these kids since Neil Armstrong’s daughter Karen died of DIPG in 1962.
  2. Suggests that pediatric and high risk cancers have elevated consideration in the research grant process with our taxpayer dollars. In other words, it asks that we prioritize children and the dying for research into cures.
  3. Designates May 17th as National DIPG Awareness Day, to:

  • attract a cure for this killer more quickly,
  • alert the powers-that-be to the urgent, unmet needs of children with cancer and deadly disease,
  • educate clinicians, caregivers and parents to the signs and symptoms of brain tumors to save lives right away,
  • dispel resistance from insurance companies to using the definitive diagnostic tool, the MRI;
  • ensure more information would be shared at regarding the most promising treatments when a matter of days can mean life or death,
  • recognize the tens of thousands of children who have bravely died of DIPG in obscurity for decades, and their devastated families.

FIND YOUR REPRESENTATIVES HERE: https://www.govtrack.us/congress/members

In your message, let your Rep know that A, you want them to co-sponsor the DIPG Awareness Resolution for childhood brain cancer, B, that Debbie Dingell (MI-12) is the lead sponsor for contact. THANK THEM for honoring your request as their constituent.

Use the hashtag #HouseVOTE and thank them on Twitter! The Twenty-Two Originals:

Cosponsor
Date Cosponsored
Rep. Joyce, David P. [R-OH-14]*
05/17/2021
Rep. Butterfield, G. K. [D-NC-1]*
05/17/2021
Rep. Cleaver, Emanuel [D-MO-5]*
05/17/2021
Rep. Speier, Jackie [D-CA-14]*
05/17/2021
Rep. Blumenauer, Earl [D-OR-3]*
05/17/2021
Rep. Cohen, Steve [D-TN-9]*
05/17/2021
Rep. Williams, Nikema [D-GA-5]*
05/17/2021
Rep. Levin, Andy [D-MI-9]*
05/17/2021
Rep. Dean, Madeleine [D-PA-4]*
05/17/2021
Rep. Deutch, Theodore E. [D-FL-22]*
05/17/2021
Rep. Pingree, Chellie [D-ME-1]*
05/17/2021
Rep. LaMalfa, Doug [R-CA-1]*
05/17/2021
Rep. Salazar, Maria Elvira [R-FL-27]*
05/17/2021
Rep. Connolly, Gerald E. [D-VA-11]*
05/17/2021
Rep. Vela, Filemon [D-TX-34]*
05/17/2021
Rep. Rutherford, John H. [R-FL-4]*
05/17/2021
Rep. Walorski, Jackie [R-IN-2]*
05/17/2021
Rep. Lamb, Conor [D-PA-17]*
05/17/2021
Rep. Rush, Bobby L. [D-IL-1]*
05/17/2021
Rep. Long, Billy [R-MO-7]*
05/17/2021
Rep. Waltz, Michael [R-FL-6]*
05/17/2021

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) organizer, co-founder

Paul Miller 720-989-5047 (Colorado, US West) -co-founder

RALLY ON!