“Our kids don’t deserve a death sentence.” Make childhood cancer history with us!
SIGN-ON support letter for individuals and orgs for H. RES. 416–repeat/share daily for effectiveness: http:bit.ly/dare-2024
Advocacy toolkit available HERE on August 3, 2024
Fantastic news…the 2024 Senate Resolution passed…that makes 6 years in a row!
Did you know that we began the push for the Senate resolution due to the “push-BACK” in the House? Even though there is a ban on so-called Commemorative resolutions from overuse in the 1990s U.S. House of Representatives, there is an exception protocol and a “suspension of rules” process for which this resolution definitely qualifies. Yet, it’s not been given this basic consideration for 8 years. THE TIME HAS COME. This is what we are pushing for this FALL, 2024. No more watching a slough of post-office namings at the final hour of Congress, without consideration for Americas children dying of brain cancer.
“Our children have no voice; after 9 years, nearly 4000 more children lost in the USA to DIPG alone, a House Majority of support in the previous 2 Congresses, send the message that our children’s lives are more important than corporate interests! Please; our children are worth consideration for a few minutes of floortime discussion and a vote before the end of this Congress.”
Most importantly H. Res. 416 will impact the national narratives and beliefs people commonly hold about childhood cancer, and accelerate the production of effective therapies. It will make obvious the need to pass and sign the Promising Pathways Act(HR4408) and the Fairness to Kids with Cancer Act (HR5405). We are so very close in scientific understanding yet so far away in awareness of the unmet need and funding for clinical trials. Awareness is, and has been historically, THE necessary catalyst for a cure.
At the close of the last session of Congress, the DIPG Awareness Resolution gained a majority of signatures–220–FOR THE SECOND TIME–which is unprecedented for a resolution of this kind for childhood disease. Our goal is, after 9 years, five introductions and nearly 4000 more children lost to DIPG, for the resolution to finally be given consideration for floor discussion and a #HouseVote!
House Rules are reconstituted EVERY CONGRESS, and we all witnessed the political posturing at the beginning of the 118th Congress with the rules. The rules ought to ensure that the needs of The People are better represented. We are calling for the 30 year-old rule banning floor-time for resolutions, which include a day of recognition, to be reviewed in light of current circumstances. The urgent, unmet medical needs of America’s children are worthy of floor-time in the House of Representatives. Once and for all, PASS H. RES.416.