Advocate With US

117th Congress

DIPG Awareness Resolution for Childhood Brain Cancer in the House and Senate

LETTER TO COMMUNITY WITH CURRENT ADVOCACY STRATEGY, SUMMER 2021 THROUGH WINTER 2021.

Press Summary gives a description for the public and a brief history of the Resolution.

May 17, 2021 in the House and Senate

Senate passes S. Res. 231 by Unanimous Consent

Amid our struggle for recognition for children with brain cancer in the House, the US Senate has greatly benefited our community by unanimously passing the 2019, 2020, and now the 2021 DIPG/Pediatric Brain Cancer Awareness Resolutions, led by Senator Marco Rubio (R-FL) and Senator Jack Reed (D-RI); also joining for the introductions were Senator Braun (R-IN), Senator Hyde-Smith (R-MS) and Senator Casey (R-PA). Unlike the House version, which would recognize May 17 in perpetuity, the Senate Resolution must be renewed each year.

House Introduces H. Res. 404 (DIPG Awareness Resolution)

We are hopeful that at some point during the 117th Congress, after 3 previous introductions of the House Resolution and quite literally one half of the House of Representatives signed onto it before the close of the 116th Congress, that House Leadership will allow consideration for scheduled time in the House of Representatives to discuss the urgent, unmet needs of children fighting brain cancer–the #1 cause of disease-related childhood mortality in the United States. In 2021, most still remain unaware of this fact, and the tragic deaths continue out of sight, and mind, and our children suffer without effective treatments.

Congresswoman Debbie Dingell (D-MI-12) is the lead sponsor for the 117th Congress DIPG Awareness Resolution, and she was joined by David Joyce (R-OH-14), and 20 others supporting the introduction of the Resolution in the House of Representatives which occurred on May 17, 2021.

For your advocacy needs download the sample scripts and written messages which can be sent from anywhere in the USA to their Reps in Congress, or phoned in, with the simple “ask” of, “please cosponsor the DIPG Awareness Resolution, H. Res. 404…” Our goal is to attain a supermajority of the House Membership signed on by the end of this year. That number is 290, which forces House Leadership to consider the importance of the resolution’s receiving time for floor discussion and a vote. Our practical goal is 300 plus members, on or before Jan. 1 2022, allowing us 5 months to rally House Leadership to schedule a vote before May 17, 2022. We have until Dec. 31 for a vote for it to potentially pass, but we’re shooting for May 17th of next year.

For this, our Director of Community Outreach, Katherine Bader, will be organizing our volunteers and families by state and region to help our groups appointment-making process with offices on the Hill, and also providing the public with tools that are easy to use to advocate for this important resolution for children with DIPG, and recognition for all children fighting cancer and other deadly disease.

  • July Letter to Congress (includes endorsements and Resolution text)
  • Endorsements
  • Press Summary
  • Resolution TEXT
  • Sample Script for writing/calling your Rep in Congress –but honestly, use any portion or language of our Letter to Congress. It can give good context also for a letter of any length you would like to write. Your authentic thoughts and words, simple and to the point with the simple ask of having your Rep cosponsor, is best.

In your message, let your Rep know that A, you want them to co-sponsor the DIPG Awareness Resolution for childhood brain cancer, B, that Debbie Dingell (MI-12) is the lead sponsor for contact.

Although we will have more detailed advocacy instructions for the House Resolution in the weeks and months to come, if you would like to ask your Rep to support it now simply enter your zip code on this linked page and your Reps will be presented to you, with links to their websites and contact information.

Please consider thanking those who have signed-on to date: list on govtrack.us // list on congress.gov

Use the hashtag #moonshot4kids and thank them on Twitter! The Twenty-Two Originals:

Cosponsor
Date Cosponsored
Rep. Joyce, David P. [R-OH-14]*
05/17/2021
Rep. Butterfield, G. K. [D-NC-1]*
05/17/2021
Rep. Cleaver, Emanuel [D-MO-5]*
05/17/2021
Rep. Speier, Jackie [D-CA-14]*
05/17/2021
Rep. Blumenauer, Earl [D-OR-3]*
05/17/2021
Rep. Cohen, Steve [D-TN-9]*
05/17/2021
Rep. Williams, Nikema [D-GA-5]*
05/17/2021
Rep. Levin, Andy [D-MI-9]*
05/17/2021
Rep. Dean, Madeleine [D-PA-4]*
05/17/2021
Rep. Deutch, Theodore E. [D-FL-22]*
05/17/2021
Rep. Pingree, Chellie [D-ME-1]*
05/17/2021
Rep. LaMalfa, Doug [R-CA-1]*
05/17/2021
Rep. Salazar, Maria Elvira [R-FL-27]*
05/17/2021
Rep. Connolly, Gerald E. [D-VA-11]*
05/17/2021
Rep. Vela, Filemon [D-TX-34]*
05/17/2021
Rep. Rutherford, John H. [R-FL-4]*
05/17/2021
Rep. Walorski, Jackie [R-IN-2]*
05/17/2021
Rep. Lamb, Conor [D-PA-17]*
05/17/2021
Rep. Rush, Bobby L. [D-IL-1]*
05/17/2021
Rep. Long, Billy [R-MO-7]*
05/17/2021
Rep. Waltz, Michael [R-FL-6]*
05/17/2021

Interactive Map Updates on the DIPG Map Page for our childhood brain cancer community! Thank you to our awesome Community Outreach Director Katherine Bader!

Click link below for our facebook group page.

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) organizer, co-founder
Elizabeth Psar 865-765-9655 (TN, US Southeast) co-founder
Paul Miller 720-989-5047 (Colorado, US West) -co-founder

Bonnie Woodworth 813-545-0649 -social media

Katherine Bader 573-826-7491 (MO, Group Secretary)

RALLY ON!