Advocate With US

Feb. 7 update: 93 cosponsors! 125 to go for automatic vote

H. Res. 114 raises awareness to the lack of adequate research funding into cures for pediatric cancer, and the statistics around pediatric brain cancer, which is responsible for more childhood deaths than any other disease. H. Res. 114 suggests that the years of life lost, and mortality rates associated with a given type of cancer be prioritized in the decision-making process for research grants with our government funds and private sector funds. It doesn’t dictate process; it suggests this as an important part of the solution to the problem of inadequate funding to save our kids lives. They deserve more of a fight from us. The Resolution text cites the numbers. Be aware of its contents for maximum effectiveness in your advocacy.


(post contains helpful links and sources.)

H. Res. 114 needs 218 votes to pass, OR a “Suspension of Rules” House Vote for which it qualifies under Protocol 7, Rule 28. Ask your Rep to support a #HouseVote!

Lend Your Voice to end obscurity for DIPG and pediatric brain cancer.

Supportive and informational documents to help you advocate:

  1. introductory letter and supporting documents to members of the House of Representatives to accompany your request.
  2. Joint Statement of Experts attesting to the importance of the Resolution, and also:
  3. Support letter from the Alliance for Childhood Cancer which can be included.
Any US Resident may support H. Res. 114! Name and address, contact info, brief “SOS” or Statement of Support, which is your “ASK” shown below.

Write, Call, and Email.

  • The “ASK”: “Please support and cosponsor H. Res. 114, the DIPG Awareness Resolution. ” Any US citizen/resident may do this. If your family or friends are directly affected, briefly share your story. There are links to samples below.
  • Backing up what you do with a snail-mail letter is a good choice. Again, if you wish you may include our letter and support documents with your snail mail letter; simply download and print from the top of this page.
  • Use the link below to find your Representative online; every office allows you to write your Rep and email through their website. It’s quick, easy; take advantage! You may share the link for our packet to back-up your Ask–available Nov. 6, 2019.
  • Call! Call the Washington Office, and if you’re really committed, please call the District Office near you; you may also walk-in your request rather than snail-mail. Sample phone script
  • Samples in .pdf: Concerned Citizens / Cancer families&friends Samples in .docsx: Concerned Citizens /Cancer families&friends
  • Phone Script

How do you get help of your Representatives in Congress? How do you raise greater public awareness to a problem of devastation that no one wants to think about, children dying of a disease no one wants to talk about? Answer: USE YOUR VOICE in our democracy!

Here is a link to find YOUR House Representative’s info.

What’s an H. Res. bill in this context (another post)

DIPG Advocacy Group can do the work for you if you prefer

–no problem! Email and include your name, address to prove constituency, contact info, etc, and any other info relevant to your request. Directions

The Goal: Right now we need as many voices as possible across the country asking for the Resolution to pass; there are 435 Districts, and so far, the Resolution has 68 co-sponsors as of Nov. 13. It needs 218 for an automatic House Vote, 150 to go!

DIPG as Ambassador to Congress and the Public for Childhood Cancer

The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public to be aware–this is paramount to accountability.

“They can’t care if they’re not aware,” said Aimee Dickey, forever 12, over a decade ago… DIPG, in all of its horror, makes a very strong case for pediatric cancer. Use it.

“…To this day it is not unusual for parents to hear that there are no solutions for their child with DIPG because, ‘the numbers aren’t great enough for investors,’ in the wealthiest country in the world boasting the greatest technologies. DIPG children walk bravely toward their death as their bodies decline, in full awareness of what is happening to them in most cases, as their parents must witness this in utter helplessness…”

To support ALL CURRENT BILLS AFFECTING CHILDREN WITH CANCER visit The Children’s Cancer Cause, the US #1 Advocacy and Federal Policy organization.

Click link below for our facebook page.

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) Organizer
Elizabeth Psar 865-765-9655 (US Southeast)
Paul Miller 720-989-5047 (Colorado, US West)
Vicki Thomas 732-773-5564 (NY-NJ Metro)
Kirsten Finley 859-991-1084 (US Midwest/SE)

Letters to VIPs in the House:

House Leadership: Speaker Pelosi, Majority and Minority Leaders, and Whips

California Reps (the bill originated in California–they should be on board! Californians feel free to use this.)

House Energy and Commerce Committee and Subcommittee on Health

Find your District and Representative: