Advocate With US

117th Congress Introductions:

DIPG Awareness Resolution for Childhood Brain Cancer in the House and Senate

Press Summary gives a description for the public and a brief history of the Resolution.

May 17, 2021 in the House and Senate

CHECK BACK JUNE 1 FOR A FULL JUNE – AUGUST 2021 Schedule, Sept through December in the works.

  • 117th Congress Introduction of the DIPG Awareness Resolution in the HOUSE of Representatives (May 17)
  • A VOTE is scheduled for the 2021 Senate DIPG/Pediatric Brain Cancer Awareness Resolution

We are hopeful that at some point during the 117th Congress, after 3 previous introductions of the House Resolution and quite literally one half of the House of Representatives signed onto it before the close of the 116th Congress, that House Leadership will allow consideration for scheduled time in the House of Representatives to discuss the urgent, unmet needs of children fighting brain cancer–the #1 cause of disease-related childhood mortality in the United States. In 2021, most still remain unaware of this fact, and the tragic deaths continue out of sight, and mind, and our children suffer without effective treatments.

Amid our struggle for recognition for children with brain cancer in the House, the US Senate has greatly benefited our community by unanimously passing the 2019 and the 2020 DIPG/Pediatric Brain Cancer Awareness Resolutions, led by Senator Marco Rubio (R-FL) and Senator Jack Reed (D-RI); also joining for the introductions were Senator Braun (R-IN), Senator Hyde-Smith (R-MS) and Senator Casey (R-PA). The 2021 Senate vote is still pending and expected to go through Monday, May 24 unanimously.

In the U. S. House of Representatives

Congresswoman Debbie Dingell (D-MI-12) is the lead sponsor for the 117th Congress DIPG Awareness Resolution, and she was joined by David Joyce (R-OH-14), and 21 others supporting the introduction of the Resolution in the House of Representatives which occurred on May 17, 2021. Our team is sending out thank you letters to all original cosponsors, and we are now gearing up to create a support campaign for Summer 2021, with zoom meetings, community engagement and in-person meetings on the Hill, beginning June 1. A full schedule will be posted Sunday, May 30th for the community of childhood brain cancer advocates.

For your advocacy needs we will supply sample scripts and written messages which can be sent from anywhere in the USA to their Reps in Congress, or phoned in, with the simple “ask” of, “please cosponsor the DIPG Awareness Resolution, H. Res. 404…”, with our goal being a supermajority of the House Membership signed on by the end of this year. That number is 290, which forces House Leadership to consider the importance of the resolution’s receiving time for floor discussion and a vote. Our practical goal is 300 plus members, to be sure. For this, our Director of Community Outreach, Katherine Bader, will be organizing our volunteers and families by state and region to help our groups appointment-making process with offices on the Hill, and also providing the public with tools that are easy to use to advocate for this important resolution for children with DIPG, and recognition for all children fighting cancer and other deadly disease.

Although we will have more detailed advocacy instructions for the House Resolution in the weeks and months to come on June 1, if you would like to ask your Rep to support it now: simply enter your zip code on this linked page and your Reps will be presented to you, with links to their websites and contact information.

In your message, let your Rep know that A, you want them to co-sponsor the DIPG Awareness Resolution for childhood brain cancer, B, that Debbie Dingell (MI-12) is the lead sponsor.

Please consider thanking the lead sponsors for their leadership!

Use the hashtag #moonshot4kids and thank them on Twitter!

Date Cosponsored
Rep. Joyce, David P. [R-OH-14]*
Rep. Butterfield, G. K. [D-NC-1]*
Rep. Cleaver, Emanuel [D-MO-5]*
Rep. Speier, Jackie [D-CA-14]*
Rep. Blumenauer, Earl [D-OR-3]*
Rep. Cohen, Steve [D-TN-9]*
Rep. Williams, Nikema [D-GA-5]*
Rep. Levin, Andy [D-MI-9]*
Rep. Dean, Madeleine [D-PA-4]*
Rep. Deutch, Theodore E. [D-FL-22]*
Rep. Pingree, Chellie [D-ME-1]*
Rep. LaMalfa, Doug [R-CA-1]*
Rep. Salazar, Maria Elvira [R-FL-27]*
Rep. Connolly, Gerald E. [D-VA-11]*
Rep. Vela, Filemon [D-TX-34]*
Rep. Rutherford, John H. [R-FL-4]*
Rep. Walorski, Jackie [R-IN-2]*
Rep. Lamb, Conor [D-PA-17]*
Rep. Rush, Bobby L. [D-IL-1]*
Rep. Long, Billy [R-MO-7]*
Rep. Waltz, Michael [R-FL-6]*

In the U. S. Senate

Senator Marco Rubio (R-FL) and Senator Jack Reed (D-RI) will once again lead in the introduction of the 2021 Senate DIPG/Pediatric Brain Cancer Awareness Resolution, along with Senator Braun (R-IN), Senator Casey (D-PA) and Senator Hyde-Smith (R-MS)! The process is a little different in the Senate than in the House (see the Press Summary); it will be “hotlined” for a vote, which must be unanimous for it to pass, on or before Monday May 17 2021.

We are currently sending letters of thanks to all US Senate Offices and also encouragement to gain more original cosponsors to sign-on to the introduction. To ask your Senators to sign-on to the introduction, visit your Senator’s website and write an email letter, or call their DC office as well as one of the field offices in your state.

Interactive Map Updates on the DIPG Map Page for our childhood brain cancer community! Thank you to our awesome Community Outreach Director Katherine Bader!

Click link below for our facebook group page.

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) organizer, co-founder
Elizabeth Psar 865-765-9655 (TN, US Southeast) co-founder
Paul Miller 720-989-5047 (Colorado, US West) -co-founder

Bonnie Woodworth 813-545-0649 -social media

Katherine Bader 573-826-7491 (MO, Group Secretary)