Advocate With US

117th Congress Introductions:

DIPG Awareness Resolution for Childhood Brain Cancer in the House and Senate

Press Summary gives a description for the public and a brief history of the Resolution.

We are hopeful that, after 3 previous introductions of the House Resolution and quite literally one half of the House of Representatives signed onto it before the close of the 116th Congress, that House Leadership will allow consideration for scheduled time in the House of Representatives to discuss the urgent, unmet needs of children fighting brain cancer–the #1 cause of disease-related childhood mortality in the United States. In 2021, most still remain unaware of this fact, and the tragic deaths continue out of sight, and mind, and our children suffer without effective treatments.

Amid our struggle for recognition for children with brain cancer in the House, the US Senate has greatly benefited our community by unanimously passing the 2019 and the 2020 DIPG/Pediatric Brain Cancer Awareness Resolutions, led by Senator Marco Rubio (R-FL) and Senator Jack Reed (D-RI); also joining for the introductions were Senator Braun (R-IN), Senator Hyde-Smith (R-MS) and Senator Casey (R-PA). Both Chambers are scheduled for Resolution introductions for childhood brain cancer awareness on or before May 17, 2021.

In the U. S. House of Representatives

Congresswoman Debbie Dingell (D-MI-12) is the lead sponsor for the 117th Congress DIPG Awareness Resolution, and she is joined by David Joyce (R-OH-14), Mike Garcia (R-CA-25) and others supporting the introduction of the Resolution in the House of Representatives slated for May 17, 2021! Our team is sending out a letter to House Members encouraging them to support the introduction; it includes a listing of endorsements, a press summary, and a draft of the resolution. You may access these documents separately below, or the complete package on the link above.

If you would like to encourage your Representative in Congress to support the May 17 introduction, there are 3 avenues by which you can quickly and easily get a message to him or her:

If you do not know who your Representatives are, simply enter your zip code on this linked page and your House and Senate Reps will be presented to you, with links to their websites and contact information.

  1. Write an email note to them online, on your Representatives website
  2. Call your Reps Washington DC office and speak to staff / leave a message
  3. Call your Reps District office and speak to staff / leave a message

Please consider thanking the lead sponsors for their leadership! Although we will have more detailed advocacy instructions for the House Resolution in the weeks and months to come–as its introduction is the beginning of its life in the 117th Congress–right now we’re trying to get as many Reps as possible to sign on to the introduction–in both chambers, and you absolutely can help us by using the above!

In the U. S. Senate

Senator Marco Rubio (R-FL) and Senator Jack Reed (D-RI) will once again lead in the introduction of the 2021 Senate DIPG/Pediatric Brain Cancer Awareness Resolution, along with Senator Braun (R-IN), Senator Casey (D-PA) and Senator Hyde-Smith (R-MS)! The process is a little different in the Senate than in the House (see the Press Summary); it will be “hotlined” for a vote, which must be unanimous for it to pass, on or before Monday May 17 2021.

We are currently sending letters of thanks to all US Senate Offices and also encouragement to gain more original cosponsors to sign-on to the introduction. To ask your Senators to sign-on to the introduction, visit your Senator’s website and write an email letter, or call their DC office as well as one of the field offices in your state.

Interactive Map Updates on the DIPG Map Page for our childhood brain cancer community! Thank you to our awesome Community Outreach Director Katherine Bader!

Click link below for our facebook group page.

Visit our FACEBOOK Page and share in our weekly conferences for more information!

DIPG Advocacy Group Contacts:

Janet Demeter 818-400-2724 (CA) organizer, co-founder
Elizabeth Psar 865-765-9655 (TN, US Southeast) co-founder
Paul Miller 720-989-5047 (Colorado, US West) -co-founder

Bonnie Woodworth 813-545-0649 -social media

Katherine Bader 573-826-7491 (MO, Group Secretary)