News

Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day

FOR IMMEDIATE RELEASE:May 17, 2021CONTACT:Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by introducing a resolution with Rep. David Joyce (R-OH) to establish May 17th as DIPG …

Press Release, Senator Mike Braun (R-IN)

FOR IMMEDIATE RELEASE May 13, 2021 Senator Mike Braun reintroduces Promising Pathway Act (PPA) & The Accelerated Drug Approval for Prescription Therapies (ADAPT) Act  WASHINGTON — Today, U.S. Senator Mike Braun reintroduced two bills that will help get treatments to American patients more efficiently: The Accelerated Drug Approval for Prescription Therapies (ADAPT) Act and the Promising Pathway Act (PPA). “Americans …

Bexion Pharmaceuticals Announces the Addition of Olivia F. Kirtley to Board of Directors

FOR IMMEDIATE RELEASE Covington, KY February 22, 2021, pdf original format Bexion Pharmaceuticals, Inc. announced today that it has added Olivia F. Kirtley to its Board of Directors. Ms. Kirtley, a Certified Public Accountant and Chartered Global Management Accountant, is a business consultant on strategic, risk and corporate governance issues. She brings to Bexion extensive experience as a former chief …

2021

HAPPY NEW YEAR! connect to actual newsletter from Jack’s Angels THANK YOUTo our doctors and researchers, clinicians and caregivers for your tireless work on behalf of our children and creating hope, and for creating the amazing #Moonshot4Kids Briefing this year, a first for pediatric brain cancer and DIPG. The same enthusiastic thanks to DragonMaster Foundation, Michael Mosier Defeat DIPG foundation, Julia …

Goal: Unanimous Consent Vote, Dec. 31!

tweet script: from 4-square: @JackieSpeier @GKButterfield @RepMcCaul @MikeKellyPA H. Res.114 recognizes May 17th as #ChildhoodCancer #DIPG Day. No money, no laws, just recognition…216 cosponsors can’t be wrong. Come together for kids fighting cancer. Isn’t that what our Caucus is for? PASS IT THIS TIME! 3 prong strategy: Get 218! 2-4 more signatures– Target list below. GA, MD, NY, PA, SC, …

Letter to Speaker Pelosi, 12/22/2020

What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to the current legislative protocol regarding exceptions for commemoratives.  From what …

For Community News

For those wishing to make H. Res. 114 and the resistance House Leadership is giving it for consideration, National News, you may use these two docs, and our Letter to House Leadership. These 2 documents go together: Press Story for Community to Share H. Res. 114 Summary for Press to accompany story Letter to House Leadership

Jaisyn: In Loving Memory

Angie and Emanuel Reese, and their family in Plymouth, IN His mother’s FB post First and foremost THANK YOU💛 Thank you for all the love, prayers, texts, calls, food…just everything. Even though Jaisyn’s Journey 💛 has come to a close here on earth, it will never end. When I am able I will continue to advocate and fight for all …