Advocacy Group Hosts Demonstration at the US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death

The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. SANTA CLARITA, CA, USA, November 1, 2020 /EINPresswire.com/ — DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the purpose of supporting the National DIPG Awareness Resolution in …

The Race for the Angels

REGISTRATION OPEN $20. Virtual 5k Run/Walk Challenge begins Nov. 1 at sunrise and continues through Sunday, Nov. 29 Support Awareness for DIPG and Pediatric Brain Cancer, and the “Little Bill That Could”, H. Res. 114, to the Finish Line! Proceeds benefit the DIPG Research Fund at Children’s Hospital Los Angeles Share a picture on social media with the hashtag #Moonshot4Kids, …

Turning Advocacy Into Activism

An event hosted by the Shepherd Foundation, letter from Catharine Young, CEO. For more information visit: https://www.rarecancertoolkit.com/events Good Morning,In a time where our voice matters more than anything, I wanted to personally invite you to our follow on event from the congressional briefing next week Wednesday October 28 12-1PM EST, to learn how to influence Congress, hone your story and create major impact. We …

What’s In A Day?

The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …

Virtual #Moonshot4Kids ‘Rally for Our Children’ Event Salutes Childhood Cancer Awareness Month

With a focus on brain cancer, the leading cause of cancer-related deaths in children and also the most prevalent of childhood cancer subtypes, the #Moonshot4Kids “Rally for Our Children” virtual media event on Friday, September 25 beginning at 8:30 pm EST brought together researchers in pediatric oncology, members of Congress, advocates for children with cancer, pediatric brain cancer families, and …

Bexion Pharmaceuticals, Inc. Receives Rare Pediatric Disease Designation

Pdf document source FOR IMMEDIATE RELEASE [Covington, KY] September 30, 2020 Bexion Pharmaceuticals, Inc., a clinical stage biotechnology company focused on developing innovative cures for cancer, announced that the Federal Drug Administration (FDA) has granted the company’s request for rare pediatric disease designation for BXQ-350, Bexion’s lead therapeutic, for the treatment of diffuse intrinsic pontine glioma (DIPG) and diffuse midline …

September 2020 #Moonshot4Kids, “Rally for Our Children” on Capitol Hill Goes Virtual

 #Moonshot4Kids Virtual Rally event features legislators, childhood cancer survivors, researchers and families, live from Red Rocks Amphitheater, CO, 8:30pm ET, Sept. 25, 2020, heralding CureFest 2020 the following day. Sept. 5, 2020, Santa Clarita, CA–DIPG Advocacy Group and Jack’s Angels Inc, a charitable organization for awareness and research for DIPG and pediatric brain cancer based in Santa Clarita, CA, is …

#Moonshot4Kids Rally Community Participation

Community download the flyer. video/photo release for submissions. Live Rally Participation! We are looking for families and advocates who would like to participate as part of a live audience through video platform, so that you would all be in squares on the screen Brady Bunch style, with random close ups and some coordinated–more info on that to come. Let us …

#Moonshot4Kids Rally for Our Children

RE-AIRING OF EVENT FRIDAY, OCT. 2 AT 8PM EST …on Childhood Cancer Talk Radio’s Facebook Page and we’ll attempt to stream it here! Social Media Kit Preliminary press release Rally run-down Members of Congress Congressman Mike Garcia (CA-25) *Congressman Brian Fitzpatrick (PA-1) Congresswoman Jennifer Wexton (VA-10) *Congressman Mike Kelly (PA-16) Congressman G. K. Butterfield (NC-1)    Foundation/Organization Leaders Sarah Milberg (St. …

Superhero Advocates

Today’s episode of Childhood Cancer Talk Radio is a special tribute to the superhero advocates in our community, those concerned citizens among us who never draw attention to themselves but serve to help children with cancer in a variety of capacities, but one aspect of their lives which we are recognizing today is that each is acting out of empathy …