News

Jaisyn: In Loving Memory

Angie and Emanuel Reese, and their family in Plymouth, IN His mother’s FB post First and foremost THANK YOU💛 Thank you for all the love, prayers, texts, calls, food…just everything. Even though Jaisyn’s Journey 💛 has come to a close here on earth, it will never end. When I am able I will continue to advocate and fight for all …

Victims of Deadliest Childhood Cancer Plead for Passage of Long-Standing DIPG Resolution Before End of Congressional Session

The end of the 116th Congress approaches quickly as childhood cancer advocates are anxious to see H. Res. 114, the DIPG Awareness Resolution in the House of Representatives finally get a vote. The marginalization of childhood cancer research is not well understood by the general public, nor fully by Congress, but is eaten, slept, and breathed by parents of the afflicted. In …

Advocacy Group Hosts Demonstration at the US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death

EVENT CANCELLED DUE TO CORONAVIRUS ESCALATIONS The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. SANTA CLARITA, CA, USA, November 1, 2020 /EINPresswire.com/ — DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the purpose of supporting …

The Race for the Angels

REGISTRATION OPEN $20. Virtual 5k Run/Walk Challenge begins Nov. 1 at sunrise and continues through Sunday, Nov. 29 Support Awareness for DIPG and Pediatric Brain Cancer, and the “Little Bill That Could”, H. Res. 114, to the Finish Line! Proceeds benefit the DIPG Research Fund at Children’s Hospital Los Angeles Share a picture on social media with the hashtag #Moonshot4Kids, …

Turning Advocacy Into Activism

An event hosted by the Shepherd Foundation, letter from Catharine Young, CEO. For more information visit: https://www.rarecancertoolkit.com/events Good Morning,In a time where our voice matters more than anything, I wanted to personally invite you to our follow on event from the congressional briefing next week Wednesday October 28 12-1PM EST, to learn how to influence Congress, hone your story and create major impact. We …

What’s In A Day?

The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …

Virtual #Moonshot4Kids ‘Rally for Our Children’ Event Salutes Childhood Cancer Awareness Month

With a focus on brain cancer, the leading cause of cancer-related deaths in children and also the most prevalent of childhood cancer subtypes, the #Moonshot4Kids “Rally for Our Children” virtual media event on Friday, September 25 beginning at 8:30 pm EST brought together researchers in pediatric oncology, members of Congress, advocates for children with cancer, pediatric brain cancer families, and …

Bexion Pharmaceuticals, Inc. Receives Rare Pediatric Disease Designation

Pdf document source FOR IMMEDIATE RELEASE [Covington, KY] September 30, 2020 Bexion Pharmaceuticals, Inc., a clinical stage biotechnology company focused on developing innovative cures for cancer, announced that the Federal Drug Administration (FDA) has granted the company’s request for rare pediatric disease designation for BXQ-350, Bexion’s lead therapeutic, for the treatment of diffuse intrinsic pontine glioma (DIPG) and diffuse midline …