News

Wear It On Your Sleeve

To order BRACELETS:   — #Moonshot4Kids H. Res. 114 -National DIPG Awareness Resolution #HouseVote NOW! #DIPGwontWait — If you would like bracelets with the above inscription–wrapped around in one line–sent to you, simply donate (memo, ‘bracelets’): $10 gets 5 $20 gets 15 If you want a larger volumes, email dipgadvocacy@gmail.com. Click here to make a donation and have them sent to you, …

PNOC doctors address Congressional Briefing in Washington D.C.

Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …

To Congress, from Colleagues, Experts, Philanthropists, Parents, Patients

from Congressional Briefing 2/13/2020, 11am, 2168 Rayburn H.O.B.   DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114 Congresswoman Jackie Speier (D-CA-14) “DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure.”* Dr. Sabine …

To the Childhood Cancer Community

Feb. 29, 2020 To the Childhood Cancer Community: We would like to share with you an historic event for DIPG, pediatric brain cancer, and childhood cancer in general which took place just 2 weeks ago on Feb. 13, 2020 in Washington DC.  Despite advances in leukemia and progress with childhood cancer survival rates in recent years, most exclusively pediatric cancers …

Resolution Information

What is the meaning of H. Res. 114; what does it really do? H. Res. 114 raises awareness to the lack of adequate research funding into cures for pediatric cancer, and the statistics around pediatric brain cancer, CNS tumors being responsible for more childhood deaths than any other disease in the US. H. Res. 114 suggests that the years of …

No Time to Lose: Advocacy Group Makes Congressional Hearing Request for Jace Ward, Diagnosed with the Deadliest Pediatric Cancer.

Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for its less than 1% long-term survival rate.  Ironically, this is the …

What is an H. Res. bill?

Simple House Resolutions (designated H. Res. __) only need a vote in the House of Representatives to pass; they do not allocate funds or need a signature from the President as they are not laws, per se, and they are non-political. They are also referred to as a “Sense Of” Resolution as they embody a common feeling or sense of …