News

My NBTS Letter

May 4, 2020 My Letter to NBTS for “Head to the Hill” Virtual Event Dear Senators Feinstein, Harris, and to all California Reps: I am writing today as a constituent and volunteer advocate with the National Brain Tumor Society. I, like 400 other parents annually, lost my child to the 2nd most common, and the deadliest, pediatric brain cancer called …

2020 National DIPG Pediatric Brain Cancer Awareness Resolution, and May 17

May 4, 2020 To support this letter to YOUR Senators, sign HERE. To the Honorable Members of the United States Senate, and Staff:  DIPG Advocacy Group and its Affiliates would like to thank you for having supported the 2019 DIPG Pediatric Brain Cancer Awareness Resolution.  DIPG, or diffuse intrinsic pontine glioma, is the second most common pediatric brain cancer, and …

To House Leadership 4-24-2020

The Honorable Speaker of the U.S. House of Representatives, Nancy Pelosi (CA-12); The Honorable Majority Leader, Steny Hoyer (MD-5); The Honorable Minority Leader, Kevin McCarthy (CA-23); The Honorable Majority Whip, James Clyburn (SC-6), and The Honorable Minority Whip, Steve Scalise (LA-1) To our Revered House Leadership: We pray that you and your families, circles of friends and colleagues are safe and …

Wear It On Your Sleeve

To order BRACELETS:   — #Moonshot4Kids H. Res. 114 -National DIPG Awareness Resolution #HouseVote NOW! #DIPGwontWait — If you would like bracelets with the above inscription–wrapped around in one line–sent to you, simply donate (memo, ‘bracelets’): $10 gets 5 $20 gets 15 If you want a larger volumes, email dipgadvocacy@gmail.com. Click here to make a donation and have them sent to you, …

PNOC doctors address Congressional Briefing in Washington D.C.

Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …

To Congress, from Colleagues, Experts, Philanthropists, Parents, Patients

from Congressional Briefing 2/13/2020, 11am, 2168 Rayburn H.O.B.   DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114 Congresswoman Jackie Speier (D-CA-14) “DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure.”* Dr. Sabine …

To the Childhood Cancer Community

Feb. 29, 2020 To the Childhood Cancer Community: We would like to share with you an historic event for DIPG, pediatric brain cancer, and childhood cancer in general which took place just 2 weeks ago on Feb. 13, 2020 in Washington DC.  Despite advances in leukemia and progress with childhood cancer survival rates in recent years, most exclusively pediatric cancers …