Community
To connect with the DIPG community on facebook:
Support: DIPG Awareness for Family and Friends
Treatment/Research information sharing: DIPG Research
Advocacy: DIPG Advocacy Group
The Cure Starts Now find a chapter near you
ChadTough Defeat DIPG Foundation; research, support, events, and now the NURSE NAVIGATOR for DIPG patients and their families:
Pediatric Brain Tumor Foundation, community support, clinical trials, research
NATIONAL BRAIN TUMOR SOCIETY
Leading the way in pediatric brain cancer research funding and innovative clinical trials, https://braintumor.org
The Coalition Against Childhood Cancer is a network of childhood cancer organizations nationwide providing a support network addressing the needs of children with cancer and their families.
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Clinical Trials and Expert References
Bexion Pharmaceuticals has clinical trial for the newly diagnosed:
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PNOC Clinical Trials for DIPG: https://pnoc.us/clinical-trials/
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CBTN Member Institutions: https://cbtn.org/institutions
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Dr. Michelle Monje’s laboratory: https://med.stanford.edu/monje-lab.html
Lorry I. Lokey Stem Cell Research Building
265 Campus Drive, Room G3035
Stanford, CA 94305
650-724-5824
Email: mmonje (at) stanford.edu