What’s in a day? Everything. For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to the current legislative protocol regarding exceptions for commemoratives. From what …
Author: dipgadvocate
For Community News
For those wishing to make H. Res. 114 and the resistance House Leadership is giving it for consideration, National News, you may use these two docs, and our Letter to House Leadership. These 2 documents go together: Press Story for Community to Share H. Res. 114 Summary for Press to accompany story Letter to House Leadership
Arianna: In Loving Memory
Mother Kristyn Leann and her beautiful family grieve the loss of this 6 year old little girl who was diagnosed in July 2020. (California)
Jaisyn: In Loving Memory
Angie and Emanuel Reese, and their family in Plymouth, IN His mother’s FB post First and foremost THANK YOU? Thank you for all the love, prayers, texts, calls, food…just everything. Even though Jaisyn’s Journey ? has come to a close here on earth, it will never end. When I am able I will continue to advocate and fight for all …
Owen: In Loving Memory
Owen Jansen VanVuuren gained his angel wings 11/16/2020; parents Candice Hamman and Carel Jansen VanVuuren Johannesburg, South Africa
Victims of Deadliest Childhood Cancer Plead for Passage of Long-Standing DIPG Resolution Before End of Congressional Session
The end of the 116th Congress approaches quickly as childhood cancer advocates are anxious to see H. Res. 114, the DIPG Awareness Resolution in the House of Representatives finally get a vote. The marginalization of childhood cancer research is not well understood by the general public, nor fully by Congress, but is eaten, slept, and breathed by parents of the afflicted. In …
Advocacy Group Hosts Demonstration at the US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death
EVENT CANCELLED DUE TO CORONAVIRUS ESCALATIONS The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. SANTA CLARITA, CA, USA, November 1, 2020 /EINPresswire.com/ — DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the purpose of supporting …
The Race for the Angels
REGISTRATION OPEN $20. Virtual 5k Run/Walk Challenge begins Nov. 1 at sunrise and continues through Sunday, Nov. 29 Support Awareness for DIPG and Pediatric Brain Cancer, and the “Little Bill That Could”, H. Res. 114, to the Finish Line! Proceeds benefit the DIPG Research Fund at Children’s Hospital Los Angeles Share a picture on social media with the hashtag #Moonshot4Kids, …
Turning Advocacy Into Activism
An event hosted by the Shepherd Foundation, letter from Catharine Young, CEO. For more information visit: https://www.rarecancertoolkit.com/events Good Morning,In a time where our voice matters more than anything, I wanted to personally invite you to our follow on event from the congressional briefing next week Wednesday October 28 12-1PM EST, to learn how to influence Congress, hone your story and create major impact. We …
What’s In A Day?
The DIPG Community Takes a Stand for All Children’s Lives with H. Res. 114, #Moonshot4Kids. Would the Speaker of the House stand against acknowledging the urgent, unmet needs of children? It’s hard to contemplate, but this is what we may be up against. SANTA CLARITA, CA, USA, October 17, 2020 /EINPresswire.com/ — The descriptions herein have required use of the …