EIN Presswire Release 5-20-2020 Brain/CNS tumors are the leading disease-related cause of childhood death in the United States, and represent the hidden, untold tragedy of childhood cancer. I was told there were no solutions for my son because his life had no value to research investors…It’s an unacceptable reality and I won’t stop insisting that our children matter until this …
Author: dipgadvocate
Community and Government Relations Update
A message from the National Brain Tumor Society Community & Government Relations Update May 2020 Vol. 9, No. 5 Head to the Hill 2020 was a success! Brain Tumor Awareness Month Proclamations NBTS Patient and Caregiver Support Do You Need Masks? Save the Date: GBM Awareness Day 2020 Head to the Hill 2020 was a success!More than 600 brain tumor …
Senator Rubio Applauds the Passage of his Resolution to Designate May 17 as DIPG #PediatricBrainCancer Awareness Day
Brain/CNS tumors are the leading disease-related cause of childhood death in the United States and represent the hidden, untold tragedy of childhood cancer. SANTA CLARITA, CA, USA, May 20, 2020 /EINPresswire.com/ — This evening, Senator Rubio’s office sent news to Janet Demeter, Organizer for the DIPG Advocacy Group and founder of Jack’s Angels, a childhood brain cancer foundation in Agua …
To House Leadership
DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading disease-related cause of childhood mortality in the United States: pediatric brain cancer. After 4 years have passed and a third introduction, little has changed for these children. By the end of this session of Congress and …
My NBTS Letter
May 4, 2020 My Letter to NBTS for “Head to the Hill” Virtual Event Dear Senators Feinstein, Harris, and to all California Reps: I am writing today as a constituent and volunteer advocate with the National Brain Tumor Society. I, like 400 other parents annually, lost my child to the 2nd most common, and the deadliest, pediatric brain cancer called …
2020 National DIPG Pediatric Brain Cancer Awareness Resolution, and May 17
May 4, 2020 To support this letter to YOUR Senators, sign HERE. To the Honorable Members of the United States Senate, and Staff: DIPG Advocacy Group and its Affiliates would like to thank you for having supported the 2019 DIPG Pediatric Brain Cancer Awareness Resolution. DIPG, or diffuse intrinsic pontine glioma, is the second most common pediatric brain cancer, and …
Daily Capitol Hill Virtual Appointments for 4/27-5/1
Tuesday Schedule, beginning at 10:30am ET: https://dipgadvocacy.org/wp-content/uploads/2020/04/Tues-April-28-2020.pdf
To House Leadership 4-24-2020
The Honorable Speaker of the U.S. House of Representatives, Nancy Pelosi (CA-12); The Honorable Majority Leader, Steny Hoyer (MD-5); The Honorable Minority Leader, Kevin McCarthy (CA-23); The Honorable Majority Whip, James Clyburn (SC-6), and The Honorable Minority Whip, Steve Scalise (LA-1) To our Revered House Leadership: We pray that you and your families, circles of friends and colleagues are safe and …
Wear It On Your Sleeve
To order BRACELETS: — #Moonshot4Kids H. Res. 114 -National DIPG Awareness Resolution #HouseVote NOW! #DIPGwontWait — If you would like bracelets with the above inscription–wrapped around in one line–sent to you, simply donate (memo, ‘bracelets’): $10 gets 5 $20 gets 15 If you want a larger volumes, email [email protected]. Click here to make a donation and have them sent to you, …
PNOC doctors address Congressional Briefing in Washington D.C.
Posted by PNOC Foundation, March 5, 2020 Newsletter PNOC’s Project Leader Dr. Sabine Mueller and PNOC Scientific Chair Dr. Adam Resnick were members of the expert panel for the DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114. Congressional Briefing in Washington DC on February 13th. “Amongst pediatric brain tumors, diffuse midline gliomas – including diffuse intrinsic pontine …