With a focus on brain cancer, the leading cause of cancer-related deaths in children and also the most prevalent of childhood cancer subtypes, the #Moonshot4Kids “Rally for Our Children” virtual media event on Friday, September 25 beginning at 8:30 pm EST brought together researchers in pediatric oncology, members of Congress, advocates for children with cancer, pediatric brain cancer families, and …
News
Bexion Pharmaceuticals, Inc. Receives Rare Pediatric Disease Designation
Pdf document source FOR IMMEDIATE RELEASE [Covington, KY] September 30, 2020 Bexion Pharmaceuticals, Inc., a clinical stage biotechnology company focused on developing innovative cures for cancer, announced that the Federal Drug Administration (FDA) has granted the company’s request for rare pediatric disease designation for BXQ-350, Bexion’s lead therapeutic, for the treatment of diffuse intrinsic pontine glioma (DIPG) and diffuse midline …
September 2020 #Moonshot4Kids, “Rally for Our Children” on Capitol Hill Goes Virtual
#Moonshot4Kids Virtual Rally event features legislators, childhood cancer survivors, researchers and families, live from Red Rocks Amphitheater, CO, 8:30pm ET, Sept. 25, 2020, heralding CureFest 2020 the following day. Sept. 5, 2020, Santa Clarita, CA–DIPG Advocacy Group and Jack’s Angels Inc, a charitable organization for awareness and research for DIPG and pediatric brain cancer based in Santa Clarita, CA, is …
#Moonshot4Kids Rally Community Participation
Community download the flyer. video/photo release for submissions. Live Rally Participation! We are looking for families and advocates who would like to participate as part of a live audience through video platform, so that you would all be in squares on the screen Brady Bunch style, with random close ups and some coordinated–more info on that to come. Let us …
#Moonshot4Kids Rally for Our Children
RE-AIRING OF EVENT FRIDAY, OCT. 2 AT 8PM EST …on Childhood Cancer Talk Radio’s Facebook Page and we’ll attempt to stream it here! Social Media Kit Preliminary press release Rally run-down FACEBOOK LIVE ON Pages: CCTalkRadio (Childhood Cancer Talk Radio) Moonshot4Kids Jack’s Angels Foundation Members of Congress Congressman Mike Garcia (CA-25) *Congressman Brian Fitzpatrick (PA-1) Congresswoman Jennifer Wexton (VA-10) *Congressman …
Superhero Advocates
Today’s episode of Childhood Cancer Talk Radio is a special tribute to the superhero advocates in our community, those concerned citizens among us who never draw attention to themselves but serve to help children with cancer in a variety of capacities, but one aspect of their lives which we are recognizing today is that each is acting out of empathy …
The Nature of the Rules (of the House of Representatives)
By Christopher M. Davis, Analyst on Congress and the Legislative Process, Congressional Research Service, update May 20, 2019, p. 1, The Legislative Process on the House Floor: An Introduction The Nature of the Rules Article I of the Constitution imposes a few restrictions on House (and Senate) procedures—for example, requirements affecting quorums and roll-call votes—but otherwise the Constitution authorizes each …
Sign our Letter to House Leadership
September is Childhood Cancer Awareness Month: Most don’t know that Brain Tumors LEAD in: CHILHDOOD CANCER INCIDENCE CHILDHOOD CANCER DEATHS And that DIPG… is the 2nd most COMMON brain tumor in children LEADS in pediatric brain tumor deaths Click HERE to sign the letter for yourself and/or for an organization COMING OCTOBER 1ST! Letter to Committee Leadership and the Speaker …
Registration for OCTOBER Virtual Appointments with Congressional Offices
Appointments throughout OCTOBER targeting weeks beginning 10/12 , 10/19, 10/26 Goal: LET’S GET TO 218.. We got this!
To the Leadership of the US House of Representatives
July 31, 2020 pdf. version DIPG Advocacy Group and the undersigned are asking for your attention to H. Res. 114, the DIPG Awareness Resolution, and thus to the leading cancer-related cause of childhood mortality in the United States: pediatric brain cancer. After 4 years have passed and a third introduction, little has changed for these children. As we clearly outline …