The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions. Thank you for considering this and the attached information being distributed among all members of the House of Representatives. Your position on the Committee, and consideration of support for this …
Tag: DIPG Awareness Resolution
Regarding Vague Reference Objections to Awareness Days
‘We don’t do those anymore…’ Now what? What you need to know as an advocate about simple House Resolutions. Since the first iteration of the DIPG Awareness Resolution (114th Congress H. Res. 586 introduced 1/13/2016), we have occasionally experienced the disheartening “push-back” from certain legislative offices regarding an assumed abolishment of awareness days, which is not an altogether correct assumption. …